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My Ehlers-Danlos Syndrome Story:
My knee surgery:
The types of pain EDS causes me:
Differences between EDS, HSD, Hypermobility:
How to get a doctor to listen to you:
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MERCHANDISE:
INSTAGRAM:
@izzykornblau
P.O. BOX:
Isabelle Kornblau
PO Box 493
229 E 85th Street
New York, NY 10028
MY FAVORITE CHRONIC ILLNESS ESSENTIALS:
Pulse Oximeter:
Heating pad:
KT Tape brand:
Saltstick:
Nuun Hydration:
Hyperice Massager:
KT Tape:
Neck Ice Pack:
Pill holder key chain:
Ginger Chews:
Shoulder/back massager:
Jade Roller:
Foot roller:
Jar Gripper:
Cooling Towel:
Long handle shower sponge:
Long handle shower loofah:
Shower chair:
Wooden shower chair:
Waterproof heart rate/fitness tracker:
Fitbit:
Paid links
FILMING STUFF:
Camera: Canon PowerShot G5X
Editing software: Final Cut Pro
Other camera’s I suggest: Canon PowerShot G7X Mark II
Paid links
WANT TO HELP CAPTION MY VIDEOS?
Please go to my video page and click on a video that DOESN’T say CC under the view count. Once watching the video, click those three dots just below the right side of the video and click “add transcripts.” From there you can add them! Thank you so much to everyone who helps!!!!!!!!
WHAT’S EHLERS-DANLOS SYNDROME?
EDS is a genetic connective tissue disorder that causes certain mutations to aspects or types of connective tissues and results in connective tissue that is abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as more. The most common symptoms and co-morbidities include pain, dysautonomia, dislocations, GI tract dysmotility, severe joint instability, and many more. The disorder is somewhat rare, estimated to affect around 1 in every 5,000 people. However, it's speculated by many to not be as rare as we once believed.
MORE INFO ABOUT EDS:
MORE INFO ABOUT POTS:
MORE INFO ABOUT GASTROPARESIS:
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
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